Are there any other TYPE 1 diabetics that or people with other diseases that are driven crazy by this stuff?

April 30, 2010

in how to cure bad breath

Im sorry but i needed to vent and see if there was any other diabetics that think there are a lot of things wrong with the education about this diseases.
1.) the way doctors try to get kids to understand they have a serious condition that’s treatable. Im a grown adult and i still freak out when something acts up because my entire childhood i was told if i go even just a little high i would loose my legs fingers, eye sight, hearing and everything else!
2.) THAT STUPID GUY on tv for the medicare commercials that says “if you have diabetus” ITS DIABETES there is no U!
3.) The commercials that are for parents who are over feeding and over stuffing their children.AMERICA is the fat country we know this. And you know what im all for curves and i realize some people with type 2 have no control because they inherit some bad weight genes or they are getting older and their body cant keep up.. but most of the type 2 ads are about americas fat kids and their trying to get parents to feed their kids better which is good..but I did not get to enjoy 20 Twinkies a day before being cursed my whole life. I popped out of the womb this way, wheres my commercial asking people to donate and help the cause? And of course this one also leaks into the next one…
4.) which is loved ones. I HATE LOOSING PEOPLE I LOVE however science is now about keeping grandma who is 110 years old and would really like to be taken off all the noisy machines and go see grandpa in far far away land, but instead of letting her go peacefully the whole science world is trying to keep her going till shes just fades into the bed..it would be nice if you could reduce her to like 40 or 50 and then keep her going but no…lets keep her going when shes old and tired and cant walk or breath or remember all the people who might come to visit her trying to get her to sign over her belongs when…again she could go see grandpa (if she wanted to I AM NOT saying we shouldn’t prolong life-if that is what the patient wants) but their not asking their just doing when they could be focusing on curing what is wrong with the younger generation so that it stops and doesn’t effect the next one. you know things like cancer, diabetes, Alzheimer’s, arthritis. MS. and about 1000 others that effect tons of people around the world age 0- grandma.
5.) BEFORE I FORGET THIS ONE, I like jodi Foster BUT OMG everyone remembers that in panic room her daughter was diabetic and it was this whole big thing. A.) if you had a panic room there would be diabetic supplies in there IN case of emergency B.) When the clock hit 12 i do not take a “dose’ I have NEVER taken a “dose” I test before i eat, i test 2 hours after. i used to take a long acting shot and then one when i ate and one if i was high. maybe 10 times a day if needed….now im on a pump -go technology- and i only take insulin when i eat, or when im high. Could someone somewhere make a movie where they could get this right??

im really a nice person, and ive had this disease a very long time and im okay with that- but these are just a few things that drive me insane. I don’t mind explaining diabetes to people ive spent years answering “yes i can eat whatever i want, i just take insulin” every time (and there have been many times) that people ask me if i can eat that. Ive even shown people how to do all that i have to do, its fine. and im sure there are many people with other diseases that go through the same thing and i invite you to explain any grievances you have with the world in your disease so that i don’t do anything to annoy someone with it.

I try to image picking up a bag and just leaving, pretending that i COULD do that and that i wouldn’t have to make a list of how long id be gone, how many site changed that would be, how many things of test strips id need, what kind of batteries i might need and how many and the back ups in case the site doesn’t go in right.

back when i was out of high school and didn’t know what i wanted to go to college for, but needed to make up my mind so i didn’t loose my parents insurance.. i picked several different courses and signed up but took my time just pretending i could take a break if i wanted.

And I try very hard not to say “hi my names diabetic jane” I don’t care how many times ive been told, or i say to others “its just the way my life is, its normal’ i wish i could grab a cotton candy and just eat it without thinking test. calculate, take insulin. and im sure there are many people with diabetes or other diseases that also act and say its just the way life is, and make jokes when really every so often we all just curse that we got stuck. and maybe some don’t. most days it doesn’t bother me, but then some days it does… oh and warning to any diabetic doctors on yahoo. if when i have a child who’s diabetic; and they try the scare tactic…the doctor should be very afraid.
hi, thanks commenter #2. just so you know- not running. ive had diabetes for a very very long time, since i was 8. and i do take care of it. And yes it is a slow death-it basically rots your organs. My dads going throught that now, the diabetic neuropathy. I have eczema (common in diabetics) in my ear canal. it a delight. It is a diease that should be taken seriously however they need to come up with something other then the scare tactic. Im not going to have my kids go through what I did. The saying you can take a horse to water, applies to diabetes (even some of the doctors i went to when i was younger say that.) It didnt matter that they frightened me- i was too young to understand or care especially through the teenage years. The one doctor told my parents that with all the hormonal changes it was going to be a bumpy ride no matter what. I didnt get control of my diabetes until i wanted to have control.No one has to agree with me,these are my opinions. i just want more for my kids.
Thanks for responding Sandy, I was hopeing that my rant would reach out to other diabetics or family members of diabetics. Im really sorry how tough things with your husband are, I haven’t had to go through to much besides having about 10 kinds of infections a year because the diabetes makes us easy targets. Ive always thought lows were the worse, going high can be a toll on the body but lows are scary to me, high i just feel sluggish and sick but when im low i can loose my eye sight but that only happens when i drop to 30 which thankfully isnt often. IF you stop by again maybe we could chat, is there anything else the doctors can do for your husband? setting him up on a pump, or that new constant glucose pump thing might help control his lows. althought insurance companies are alwasy difficult. ok thats next
6.) People who aren’t diabetic deciding what is needed. At one point they made us pay more to get IV Preps! And limited the # of test strips i could get.

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